Busy Busy & Other things

Been really busy with the kids. I have been all over the place. Things have been stressful but I can manage.

Branden had another appointment with genetics and they believe it is hereditary. The speech and delay does run on his fathers side. So then he went to have blood work done. Poor boy. Two nurses and myself holding on to him and it was all over. Poor boy cried and screamed. He is so not a fan of needles. It was so heart breaking. When asked if he wanted a prize he said “No thank you. I don’t want anything. I just want to leave.” Aww my poor boy.

Today I went on a field trip with him and he was awesome. He loved being out in the wildlife/nature and exploring. He was so into it! He wanted to see and do so many things.

He now has Occupational Therapy along with his speech. He seems to be doing well. He has his down falls but we are working on them.

We were declined an ADE to help Branden in class but I am still not giving up. I will fight till he gets all the help he needs. Every doctor and specialist thinks he should have one but it is a matter of getting in on paper more and bringing it before to Board of Education again. But I will continue fighting.

I LOVE MY KIDS!!!!

 

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Things that have helped along the way…

LOVE (Loving one another and being there )

HOPE (Hope that no matter what we will fight this)

STRENGTH (Believing I had the strength to deal with day to day situations)

PATIENCE (The patience to deal with what was handed to me from day to day)

FAMILY & FRIENDS (To have support is amazing, you need someone to talk to and or to help when needed)

POSSITIVE ATTITUDE (Well needed to help stay focused)

SIGN LANGUAGE (Help the apraxic child communicate a bit better)

PICTURES (Placed around the house for help when needed. Example…a picture of food and dinner written underneath. This can be done with any object or actions. Emotions help a lot also)

 

 

Help Info, Uncategorized

Child can’t talk? Gets frustrated easy?

If I had something to tell you and I was unable I would be mad too. I’m sure you would also. But can you imagine for a young child? A child who’s brain is going and going and knows what he/she wants to say to you but just can’t seem to get it out.

Branden was that way. You knew he wanted to tell you things so bad. He wanted to share things with people that he did but even though it was all there he just could not get it out to the world. In the beginning it was like a guessing game until I would get to pick up on what he wanted or needed. But until that time came it was hard to watch my poor son struggle with the world. Frustrated? Oh yes he was! I can’t blame him either. People in the stores would look at Branden as if he was throwing a tantrum cause he was told no but that was not the case. At this point we were still unaware of Branden and what his issues were/are.  Time went on and on but he also taught himself to show others what he wanted and needed. He would take our hand and bring us to where he wanted you to go and point to what he wanted you to see. But still days he was frustrated. More time went on and we were put on different waiting lists and I knew the wait was long and I had to do something. My child was happy but frustrated and who knows what he was feeling inside. I didn’t want to wait anymore, it’s been long enough and I’m not going to sit back and wait while my son suffers. This little needed a way to communicate, he needed a voice in a different manner to help him so I sat down at the computer.

SIGN LANGUAGE!!! Now we can’t sit and have a full out conversation but we know some basics. This helped A LOT!!! I noticed a change in Branden right away. It was like that sweet little boy knew that Mommy was showing him something he wanted, a way to communicate. It was like he knew this was going to help. Not just cause Mommy told him so cause he really truly believed in his heart. Yes only two/three years old but still it was like he knew.

Please and Thank you were the first two he was taught. Followed by eat, play, drink, mommy, daddy, and the list went on. The more he caught on and the more he learned and was on a roll the more I would learn so I could teach him. We had fun with it and when he had enough we stopped so cause there was no pressure he was eager to learn more.

I believe this is when I really realized that I’m his voice. Yes his voice was going to be his hands but mine was the sound and he was going to need that also and I being his very proud mom was not going to sit back and or hold back with anything for him. The waiting lists we were placed on for many places were just not fast enough for my liking (I know there are others in line but as a mom a day is too long at times) so while I waiting I did what I could.

The Internet and I’m sure a library has a lot of information on sign language. Don’t feel all stressed out if your don’t believe you don’t think you can learn a lot. That was but mistake at the beginning until I stopped myself and realized that I just need to learn the basics. So I sat down and made a list. Signs I would like him to know and signs I believed he should and wants to know to help him in the world.

Being in public became easier. Not as many stares. I mean I delt with the stares and whatever that person decided to do but it was still nice not having a frustrated, sad, boy most the time when all is meant to be happy.

So that is one idea you can choose to help your child whom is non verbal. Even if they talk a bit it’s still awesome. It may help your child as it did mine. Also too keep in mind you may still choose to do this since as parents we know our child, but learn from me…there comes a time when your child is not with you 24-7 and even though we know what their needs are most the time, others do not. So this may help a lot in the outside world as well.

 

American Sign Language A-Z

APRAXIA AWARENESS, USING OUR VOICE SO A CHILD CAN BE HEARD

Help Info, This and That, Uncategorized

Student of the Month

SOOOOO PROUD!!! Branden gets student of the moth this monday for caring!!!!! He is proud of himself too and can’t wait to get it! So another frame to get and add it on the wall!!!! Last year he got it for caring also!

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327 comments in just a few days!!! PLEASE READ :)

First of all I would love to take the time to thank each and everyone of you for taking your time to visit my site. Whether is was for something or because you got here on accident. It is not just my son (and other kids) that makes me keep coming back, its not just the fact that I want to help others but it is because of you. I see the wonderful comments that you all leave and it keeps me positive to keep on going here. I know my son does but it’s nice to see too that I am actually reaching out to others.

I have to say I am amazed! I am truly blessed by all this. To be honest when my unlce got me this site for me as a gift I really wasnt sure if this would be such a hit as it is. I mean I have no computer knowledge really so I wasnt even sure and still sometimes not sure on what I am doing here. I am by no means a preofesional in any area as in having a degree in any of this. I am simply just a Mom who has her own degree I guess by living it and seeing it all every day.

I am sorry there has been a delay in my upkeep on this page but with the holidays here we have been so busy that I am even passing out with my kids lol! I promise to get my but in gear and keep going.

Shocked to see 327 comments waiting for me so I am hoping you all be patient with me as I do need to go through them all and reply to each and everyone of you.

Once again from the bottom of my heart I thank you all for your kind and sweet words.

Take care and I do wish you all a happy holiday and a wonderful and amazing New Year!!!!

Amy :) apraxiaawareness@hotmail.ca

Apraxia Awareness, Using our voice so a child can be heard :)

 

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My wish to all who visit my site…

I wish you all a very wonderful holiday and hope the New Year is an awesome one for you!
Thank you for checking out my blog and feel free to come back anytime. I hope to bring you more in the New Year! Any suggestions are also welcome to help me as I try my best to help you! Take care and happy holidays to you and your family

*Apraxia Awareness, Using our voice so a child can be heard*

Amy

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Hands on / Winter concert

Well Branden ended up coming home with a letter from his teacher about some hands on (hitting) at school. The principal took care of it though. Branden however did tell me before we even got home. So we sat down and had a chat that at school he is not to hit or kick just like at home. Reminded him of being a sweet boy so people want to be his friend and around him to play. The next day all went well!

Branden did AWESOME at his winter concert!! He knew his parts and got right into it all. I’m so proud of that boy, he is doing so well!! He tries so hard and Im happy about that

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CONTACT ME…

If you wish to contact me privately about something you could email me at apraxiaawareness@hotmail.ca

Thank you and please share this site if you like so we can get Apraxia Awareness out there

Apraxia Awareness, Using our voice so a child can be heard

Take Care, Amy

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Hello to all of you :) (little note)

Im doing my best with this blog and trying to update and add when I can. So if you have any ideas, comments, things you would like to see here please let me know. I will do my best to share, give advice or whatever is needed to help you through. Thank you :)

*Apraxia Awareness, Using our voice so a child can be heard*

This and That, Uncategorized

Going in and not backing down…..

Warning…VENTING… :)

Really? Come on now. My kid needs extra help and it’s not there when needed. What is wrong with our school system. Yes there is a teacher but she also has other students. I had a meeting with a bunch of others on getting Branden an AID in school so where is he/she? Now I hear there are steps to take? Give me a break. My child is trying his best but is having more of a hard time now that the class is picking up on a faster pace. How is this fair? No I don’t want his to be dependant on someone. I want someone to be there for when he does need the help. I still want him to grow as an independent person that he wants to be. I don’t see how it is fair for any special needs child to go through this. So what because he is not mute, in a wheelchair, or even a high level autistic he can’t get the help he NEEDS right away? He is still a special needs child. I don’t think it is fair for him to go to school and have to be stressed out the way he is. But now I know his teacher is on my side with fighting to get him the extra help. Is it because she is frustrated and not sure what to do or is it cause she sees what I see? Who knows but she is on my side. So now I have to make an appointment with the principal AGAIN and talk about this matter. This is getting ridiculous. I was told he should have one and it will be taken care of so where is it. I know it is a big change for all kids special needs or not going into grade 1  but when they need that extra boost of help it should be there.  The school told me they can accommodate Branden and help so where is it? He has a learning disability so where is his help? John McGivney Children’s Centre had help everywhere for him, Kindergarten there was help and now grade one there is nothing. No wonder the kid is acting out and his anxiety is high. Bad enough he just started his speech this Friday passed and they been in school since September. Andrew started before Branden and Branden is the one who needs it a lot more. Bad enough I’m told his occupational therapy probably wont start till February, Bad enough, Bad enough, Bad enough as the list goes on. It is just hard to watch my boy  go through this. He loves going to school and loves learning and seeing his friends but there are the melt downs. The school has done somethings to help but a bit more needs to be taken care of. So I am the voice for him, for all my kids and I wont back down and I will fight for what he/they need till the day I die. I do my best and help where I can but once in school he needs that help. Not fair to him that he falls behind and struggles when all he needs is a bit of extra help. …OK I think I am done venting. I know I was a bit all over with this but it’s the joys of venting

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